Name of Program: Heart Center Neurodevelopment Program (Primary Children’s Hospital and University of Utah)
Year Program Established: 2015
Program Leader: Kristi Glotzbach MD: Cardiac Critical Care Medicine
Program Co-Leader: Whitnee Hogan MD: Cardiology
Key Staff and Specialties:
Andrea Smith RN: Program Coordinator
Sarah Winter MD: Outpatient Developmental Pediatrics
Lloyd Tani MD and Antonio Cabrera MD: Cardiology
Sean Cunningham PhD: Outpatient Psychology
Jori Jarris SLP: Outpatient Speech and Language Pathology
Lauren Ayala PT: Outpatient Physical Therapy
Katharine Stret OT: Outpatient Occupational Therapy
Lauren Malik PT: Inpatient Physical Therapy
Courtney Jones SLP: Inpatient Speech and Language Pathology
Age Range of Patients Served: 0-14 years
Description of Inpatient Program(s): Weekly, interdisciplinary team rounds weekly on PCICU patients, individualized development plans, bedside parental engagement and education. Quarterly, formal RN education related to developmental care. Prospective research focusing on postoperative neuromonitoring (EEG) and CICU developmental care practice.
Description of Outpatient Program(s): Auto-referral at the time of principal surgical discharge as well as referrals by family, cardiologist or PCP. Bi-monthly clinics with a focus on 3 age groups (18-24mo, 4-6y, 10-12y). Clinical recommendations and referrals provided electronically to family, PCP, and primary cardiologist. Telehealth feedback sessions for more complex issues identified.
Description of research or QI projects in cardiac neurodevelopment – undergoing or accomplished: Our program focuses on neonatal neurobehavioral exams (NNNS) and their association with long term developmental outcomes. We are working on local and national quality improvement projects to improve referrals and evaluations for neurodevelopmental follow-up in high risk CHD patients.
Unique features and strengths of this program: CNOC, PC4, PAC3, NPC-QIC member, Inpatient and outpatient developmental programs, multidisciplinary care, parental engagement, local and national research and quality improvement