San Francisco, California
|Name of Program:||UCSF Pediatric Heart Center Healthy Hearts and Minds Program|
|Year Program Established:||2017|
|Program Leaders:||Dr. Shabnam Peyvandi (cardiologist) and Dr. Stephany Cox (neuropsychologist)|
|Key Staff and Specialties/Disciplines Involved in the Program:||
Shabnam Peyvandi (cardiology); Stephany Cox (Neuropsychology); Patrick McQuillen (Cardiac Critical Care); Dawn Gano (Neurology); Hannah Glass (Neurology); Rebecca Rapoport (High risk infant follow-up); Yensy Zetino (Research Coordinator); Cassy Williams (MRI resource nurse).
|Age Range of Patients Served:||Infants through adolescence|
Description of Inpatient Program(s): Cardiac GRowth And NeuroDevelopment (GRAND) is our inpatient program focused on neonates with complex CHD. Our multi-disciplinary team focuses on feeding, parental bonding, positioning, and non-pharmacologic interventions for pain.
Description of Outpatient Program(s): The Healthy Hearts & Minds Program provides developmental screening to children with CHD from infancy through adolescence. We have a dedicated neuropsychologist providing evaluations, diagnoses and suggested interventions to patients with CHD. This includes partnering with Regional Centers and schools to provide children with the best resources to overcome any learning differences they might face.
Description of research or QI projects in cardiac neurodevelopment – undergoing or accomplished: Our multi-disciplinary research team is comprised of investigators from cardiology, critical care, neurology, radiology and biomedical engineering. Through this collaboration we are developing new imaging tools to help understand acquired brain injury and brain development across the lifespan, beginning in utero. Major discoveries from our site include the observations that 1) brain development is delayed in full term babies with complex CHD; 2) neonatal acquired brain injury is common and 3) white matter injury on the severe end of the spectrum is associated with motor outcomes in infancy. Currently we are focused on understand cerebral oxygenation in the fetus with CHD and the interplay with cardiovascular physiology by using tools to acutely alter physiology such as maternal hyperoxia.
Unique features and strengths of this program: Our biggest strength is our multi-disciplinary approach to our research and clinical goals in understanding neurodevelopmental outcomes in children with CHD.