The Cardiac Neurodevelopmental Outcome Collaborative’s Steering Committee is responsible for oversight of activities of CNOC to ensure that the work being performed by the CNOC Officers, Steering Committee and Standing Committees is consistent with the vision and mission of the society, including these components:
- Advocacy for increased awareness of neurodevelopmental issues among the pediatric cardiac and congenital heart disease populations
- Approval of Standing Committee leadership and membership
- Financial oversight regarding educational and research grants
- Solicitation, management and allocation of funds for research and educational support
Co-Chairs
 Shabnam Peyvandi MD MAS University of California-San Francisco [email protected] |
Dr. Shab Peyvandi is an Associate Professor of Pediatrics, Epidemiology & Biostatistics at the University of California San Francisco with a clinical focus on fetal and pediatric cardiology. She is a funded physician researcher with a focus on neurodevelopmental outcomes in congenital heart disease. In particular, she focuses on the transection of cardiovascular physiology with brain health beginning in utero and across the lifespan. She co-directs the Healthy Hearts & Minds Program at UCSF which focuses on the long-term development and quality of life in children with CHD. She is enthusiastic about the growth of the Cardiac Neurodevelopmental Outcome Collaborative and looks forward to continuing the mission of optimizing developmental outcomes in children with CHD. |
 Kelly Wolfe PhD Children’s Hospital of Colorado [email protected] |
Dr. Wolfe is a pediatric neuropsychologist and Associate Professor at the University of Colorado School of Medicine, the Clinical Director of Neuropsychology, and the Director of the Cardiac Neurodevelopmental Follow-Up Program at Children’s Hospital Colorado (CHCO). Her responsibilities include developing and implementing clinical protocols, research studies, and outreach education for patients, families, and providers regarding neurodevelopmental sequelae in complex congenital heart disease (CHD). Her educational background includes earning a PhD in clinical psychology from the University of Alabama at Birmingham, and completing residency and post-doctoral specialty training in pediatric neuropsychology at Nationwide Children’s Hospital in Columbus, Ohio. Dr. Wolfe is passionate about advancing neurodevelopmental research, quality improvement projects, and clinical care in complex CHD. |
Co-Vice Chairs
 Nadine Kasparian PhD MAPS Cincinnati Children’s Hospital [email protected] |
Dr. Nadine Kasparian is Professor of Pediatrics, Director of the Heart and Mind Wellbeing Center, and Director of the Center for Heart Disease and Mental Health Research at Cincinnati Children’s Hospital Medical Center. Nadine received her PhD in medical psychology from the University of Sydney, Australia and a Harkness Fellowship in Health Care Policy and Practice at Harvard Medical School. In 2008, Nadine established Australasia’s first psychology program dedicated to childhood heart disease at the Sydney Children’s Hospitals Network. At Cincinnati Children’s, her research focuses on improving neurodevelopment and mental health outcomes across the lifespan among people with congenital heart disease. Nadine serves as co-chair of the CNOC Program and Meetings Committee and research co-lead for the Fontan Outcomes Network (FON). She is associate editor of Psychology and Health, on the editorial board for Cardiology in the Young, and an author of American Heart Association Scientific Statements. Nadine also serves on the Steering Committee for the Australian National Standards of Care in Childhood-Onset Heart Disease and in 2021 was invited to join the Surgeon General of California’s Adverse Childhood Experiences (ACEs) Task Force to establish recommendations for trauma-informed prenatal care. |
 Cynthia M. Ortinau MD St. Louis Children’s Hospital [email protected] |
Cynthia Ortinau is a neonatologist and Assistant Professor of Pediatrics at Washington University in St. Louis. Her clinical and research interests intersect fetal and neonatal cardiac disease and neonatal neurology. She is one of several multidisciplinary providers who care for patients in the Cardiac Neurodevelopmental Clinic at St. Louis Children’s Hospital. She is also the Director of the Cardiac Neurosciences Group at Washington University, a research team studying brain development, brain injury, and neurodevelopmental outcomes of children with congenital heart disease. She is involved in several research studies using brain magnetic resonance imaging prenatally, during infancy, and throughout childhood. She has a particular interest in studying fetal brain development, including mechanisms that may affect the typical trajectory of fetal brain development for congenital heart disease patients. |
Secretary
 Sarah Kelly PsyD Children’s Hospital Colorado [email protected] |
Dr. Sarah Kelly is a pediatric psychologist at Children’s Hospital Colorado Heart Institute and Associate Professor of Pediatrics and Psychiatry at University of Colorado School of Medicine. She provides clinical consultation and intervention services across the continuum of care including outpatient cardiology clinic and inpatient cardiac progressive, intensive, and pre/post-surgical units. She is the Director of the Heart Institute Wellness Program, the psychosocial care team, and is passionate about patient and family psychological and developmental support for children born with congenital heart disease. In particular, Dr. Kelly follows children with single ventricle hearts and their families from diagnosis through childhood and adolescence into young adulthood through the multidisciplinary Complex Congenital Heart Disease and Development Clinic, the Cardiac Neurodevelopmental Follow-up Clinic, and the Fontan Clinic. She directs a cardiology rotation for psychology trainees in pediatric health and conducts qualitative and quantitative research on emotional and behavioral outcomes and quality of life for children with heart disease. |
Treasurer
 Anjali Sadhwani PhD Boston Children’s Hospital [email protected] |
Dr. Anjali Sadhwani is a clinical child psychologist at Boston Children’s Hospital and Instructor in Psychology at Harvard Medical School. She has been working with the pediatric cardiac population for the last eight years. Dr. Sadhwani specializes in conducting neurodevelopmental assessments for infants and toddlers with congenital heart disease. In terms of her research interests she is involved in the design and implementation of several research studies examining neurodevelopmental outcomes in this population. Dr. Sadhwani has been instrumental in setting up and overseeing the management of a comprehensive cardiac neurodevelopmental database at Boston Children’s Hospital. |
Immediate Past Chairs
 Adam R. Cassidy PhD ABPP-CN Mayo Clinic [email protected] |
Dr. Adam R. Cassidy is a board certified pediatric neuropsychologist at the Mayo Clinic in Rochester, Minnesota where he has joint appointments in the Department of Psychiatry and Psychology and the Department of Pediatrics and Adolescent Medicine. He also maintains an ongoing affiliation with Boston Children’s Hospital, where he worked for the past decade before transitioning to Mayo. Dr. Cassidy is a scientist-practitioner whose research focuses on characterizing and promoting positive neurobehavioral and psychosocial outcomes among children and adolescents with critical congenital heart disease (CHD). He is very active in clinical neuropsychological assessment and consultation with children and families affected by CHD. In addition to his work in CHD, Dr. Cassidy is Principal Investigator (multi) on an NIMH-funded R01 grant examining neurodevelopmental outcomes among young children exposed in utero to HIV, he is a member of the Board of Directors of the American Academy of Clinical Neuropsychology (ABCN), and he serves as a Consulting Editor for Child Neuropsychology and The Clinical Neuropsychologist. |
 Thomas A. Miller DO Maine Medical Center [email protected] |
Dr. Miller is a pediatric cardiologist at Maine Medical Center and Division Director of Pediatric Cardiology. He previously developed and directed the Heart Center Neurodevelopmental Program at the University of Utah and Primary Children’s Hospital. He continues to be Adjunct Faculty at the University of Utah, collaborating on research initiatives regarding cardiac neurodevelopment and neonatal neurobehavior. He is a co-investigator in NHLBI-sponsored Pediatric Cardiac Genomics Consortium (PCGC) and Pediatric Heart Network (PHN) research activity. Dr. Miller’s clinical interests include fetal cardiology, echocardiography and general pediatric cardiology. |
Members at Large
 Samantha Butler PhD Boston Children’s Hospital [email protected] |
Samantha Butler is an academic pediatric psychologist, whose focus has been directed at improving the quality of hospital care and long-term outcomes for high-risk infants through clinical innovation and investigation. She promotes resilience and adaption in medically compromised youth through intervention for children, their families, and the health care environment. She is the Director of Infant Inpatient Neurodevelopment in the Cardiac Neurodevelopmental Program at Boston Children’s Hospital, Newborn Individualized Development Care and Assessment Program (NIDCAP) professional, Co-Chair of the NIDCAP Family Committee, and Vice Chair of the Cardiac Newborn Neurodevelopmental Network (SIG within CNOC). |
 Sonia Monteiro MD Texas Children’s Hospital [email protected] |
Dr. Monteiro is a Developmental-Behavioral Pediatrician who is Medical Director of the Texas Children’s Hospital Cardiac Developmental Outcomes Program, a collaborative effort among the Divisions of Cardiology, Critical Care, Developmental Pediatrics, and Psychology. Under her leadership, the clinic has grown substantially since its launch in 2013 and now follows more than 1200 children with CHD. Her current research interests include exploring barriers to neurodevelopmental follow-up, improving access to interventions, and addressing parental mental health in the CHD population. Dr. Monteiro’s research has also focused on the identification of and receipt of services for children with autism spectrum disorder, including those with CHD. Dr. Monteiro currently serves as Co-chair of CNOC’s Diversity and Inclusion Special Interest Group, whose work to date has included a survey to assess provider perceived barriers to neurodevelopmental follow-up. Dr. Monteiro is a member of CNOC’s Community Outreach Committee and is involved in the building of a parent educational resource page for the CNOC website. Dr. Monteiro is actively engaged in pediatric resident and community pediatrician education in appropriate developmental-behavioral screening and management of children with CHD within the primary care medical home. Dr. Monteiro’s goal in serving as a Member-at-Large for CNOC is to add an important developmental pediatric perspective to CNOC leadership. Serving in this position would also allow her to partner with other members to improve the quality and consistency of care received by children with congenital heart disease across the country. |
European Liaison
Nathalie H.P. Claessens MD PhD |
Nathalie Henriette Petra Claessens MD PhD is a clinical fellow in Pediatrics and a research post-doc in Neonatal Neurology at the Wilhelmina Children’s Hospital (Utrecht University, the Netherlands). Her research interests are focused on methods of improving early brain development in children with congenital heart disease and she has set up a longitudinal brain imaging program for fetuses and neonates with congenital heart disease in the Netherlands. Her educational background includes completing medical school (2014), obtaining a master’s in teaching (2017), performing a research fellowship at The Hospital for Sick Children in Toronto (2017) and earning a PhD at Utrecht University (2018). For her research, she has been awarded, among others, the Young Investigator Award of the European Society for Pediatric Research (ESPR) and of the Society for Pediatric Research (SPR). Nathalie supervises several PhD students and she is a dedicated teacher for research fellows and medical students. She is passionate about improving clinical care for children with congenital heart disease. A member of the research committee of the European Association for the Brain in Cardiac Disease (European ABCD), she is enthusiastic about international collaborations for answering research questions more quickly and accurately. |
Patient/Family Representatives
 Erin Beckemeier MEd Heart Mom and Educator [email protected] Community Outreach Vice Chair |
I have seen first-hand as a mother and a classroom teacher the impact CHD has on our heart warriors’ quality of life as it relates to their education. I have seventeen years of teaching experience, ranging from PK-8th grade, am certified in early childhood, early childhood special education, elementary education, and K-8 administration. I am a mother of five and have been a heart mom for almost 15 years. Because I was an educator, I already knew the process for getting my son the services he needed following his first surgery, seizure, and lengthy hospitalization. I want to be a part of this organization so that other parents who might not have a background in development or education will have access and information to give their child the monitoring and services they require. From my experience navigating as a parent, as well as what other parents routinely share on social media groups, there is a need for a uniform, consistent policy within the CHD setting. Currently, it seems to vary widely depending on what center or referring physician your child is seen by. My goal is to be an advocate for families affected by CHD, that they may be equipped with the information they need to help their child develop to their fullest potential. |
 Jessica Cowin MS The Children’s Heart Foundation [email protected] Community Outreach Chair |
Jessica was born with a rare and severe congenital heart defect called hypoplastic left heart syndrome (HLHS) as well as two other defects, double-outlet right ventricle (DORV) and mitral atresia (MA). She needed a series of three palliative surgeries, culminating in the Fontan. The first was at was four days old, the second at 18 months, and the third at five years of age. At the age of 13, the doctors revised the Fontan that included a pacemaker. Three years later, Jessica was told she was going to need a heart transplant; she was just about to turn 16. The CHD/HLHS life was all she knew. Jessica did not know that a transplant was ever a possibility. On Saturday, September 25, 1999 her mom answered the phone. The transplant coordinator from the hospital told her that they had a heart for Jessica, after only three weeks on the waiting list.
Nearly ten years later, Jessica went into kidney failure, due the immunosuppressive medications she had to take, to keep her heart from rejection. Her younger sister saved her life by donating one of her kidneys. It has been 21 years post heart transplant and 11 years since her kidney transplant, in 2009. Jessica is the Manager of Research & Advocacy at The Children’s Heart Foundation. She received her Bachelor’s degree from DePaul University in Business Management and Entrepreneurship and her Masters from DePaul in Health Communication. |
Standing Committee Leadership
Corinne Anton PhD ABPP |
Corinne Anton, PhD, ABPP is a board-certified psychologist in Behavioral and Cognitive Psychology, Director of the Cardiac Neurodevelopmental Program at Children’s Health in Dallas, Texas, and an Assistant Professor of Psychiatry at the University of Texas Southwestern Medical Center. She received her PhD in clinical psychology from the University of Arkansas, in Fayetteville. Dr. Anton provides clinical care and neurodevelopmental assessment for children, adolescents, and young adults with congenital heart disease. Her role extends to assessing and supporting patients with heart failure and ventricular assist devices. Dr. Anton’s research interests include neurodevelopmental outcomes among congenital heart disease patients, with a focus on fetal risk factors, longitudinal impacts of electronic device use, and physical activity on neurocognitive outcomes. Dr. Anton serves as a supervisor for practicum students, interns, and postdoctoral fellows in pediatric health and adult clinical psychology. |
 Laurence Beaulieu-Genest MD FRCPC [email protected] CHU Sainte-Justine Education & Training Vice Chair |
Dr. Beaulieu-Genest is a Developmental Pediatrician at CHU Sainte-Justine in Montréal (Québec, Canada), where she is the Medical Director of the Clinique d’investigation neurocardiaque (CINC), an interdisciplinary clinic dedicated to neurodevelopmental follow-up for children with congenital heart disease (CHD).
She is also involved in several specialized clinics of the Centre intégré du reseau en neurodéveloppement de l’enfant (CIRENE) of CHU Sainte-Justine and at the Intensive Functional Rehabilitation Unit and Long-Term Care Facility of Marie Enfant Rehabilitation Centre. Dr. Beaulieu-Genest is a Clinical Assistant Professor and Co-Director of Université de Montréal’s Developmental Pediatrics Program. She did her Pediatric Residency at CHU de Québec, Université Laval (2009–2012) before pursuing her training in Developmental Pediatrics at CHU Sainte-Justine, Université de Montréal (2012–2014). She then completed her fellowship at the Pediatric Complex Care Program and Cardiac Neurodevelopmental Program at Boston Children’s Hospital, Harvard Medical School (2015–2016). Dr. Beaulieu-Genest is passionate about supporting children with CHD and their family in reaching their full potential and adapting to medical, psychosocial, and developmental challenges. She is also enthusiastic about sharing knowledge with physicians and professionals involved in the care of children with CHD. She has been actively involved in the CNOC Education & Training Committee since 2017. |
 Joanne Bonanno MA The Hospital for Sick Children [email protected] Database & Implementation Chair |
Joanne Bonanno is a Psychometrist at the Hospital for Sick Children in Toronto. There she assesses children in the Neonatal Neurodevelopmental Follow-up Clinic as part of a team of neurodevelopmental experts who provide personalized care throughout the follow-up course, to optimize outcomes for neonates who have been admitted to the Cardiac Critical Care Unit and may be at risk for developmental issues, through the integration of research, education and community collaborations. She is tremendously hopeful about the positive impact that the Cardiac Neurodevelopmental Outcome Collaborative is having on children and their families facing congenital heart disease and is grateful for the opportunity to be part of the team. |
 Gina Boucher MSN Phoenix Children’s Hospital [email protected] Database & Implementation Vice Chair |
Gina is a Clinical Data Analyst for the Heart Center at Phoenix Children’s Hospital. She has over 26 years of nursing experience including Level IV NICU and pediatric surgery management. Born and raised on the south shore of Massachusetts, Gina graduated from New England Baptist Hospital School of Nursing in Boston and later obtained her MSN with an emphasis in Healthcare Informatics from Grand Canyon University. In addition to coordinating data for CNOC, she also manages clinical data entry at Phoenix Children’s for IMPACT, PC4, and the ACPC Quality Network. She is passionate about using data to support the quality of patient care. In her free time, Gina runs a custom sugar cookie business out of her home, enjoys doing Pilates, hiking, and photography. |
| Susan Bowen PhD Rainbow Babies and Children’s Hospital [email protected] Communications Chair |
|
 Jennifer Butcher PhD Michigan Medicine [email protected] Research Co-Chair |
Jennifer Butcher PhD is a pediatric psychologist at Michigan Medicine and an associate professor in the Department of Pediatrics at the University of Michigan School of Medicine. Clinically, Dr. Butcher is the lead psychologist in the Birth to Age Four Cardiac Neurodevelopmental Follow-Up Program within the University of Michigan Congenital Heart Center. Dr. Butcher’s research interests include designing interventions to strengthen family relationships and to promote child resiliency and neurodevelopmental outcomes among children diagnosed with congenital heart disease.
|
 Justin Elhoff MD MSCR FACC Sunrise Children’s Hospital Pediatrix Medical Group [email protected] Research Vice Chair |
Justin is the Medical Director of the Cardiac Intensive Care Unit with Pediatrix Medical Group at Sunrise Children’s Hospital in Las Vegas, NV and a Clinical Associate Professor of in the Department of Pediatrics at the Kirk Kerkorian School of Medicine at UNLV. He has previously worked as a cardiac intensivist at Texas Children’s Hospital where he helped develop the inpatient developmental care efforts and has led and participated in several research efforts pertinent to neurodevelopment in congenital heart disease. He additionally serves as a CNOC representative on the Editorial Board for Cardiology in the Young. He is also active in the Pediatric Cardiac Critical Care Consortium (PC4) as a clinical champion and member of the Audit, Program, and Scientific Review Committees. He is excited to work within the Research Committee to enhance the role of CNOC within Cardiac Networks United and promote continued research efforts to focus on longitudinal and holistic outcome measures for patients with congenital heart disease. |
 Jennifer Fogel MS CCC-SLP/L Advocate Children’s Hospital [email protected] Education & Training Chair |
Jennifer Fogel MS CCC-SLP/L is currently working as a speech language pathologist at Advocate Children’s Hospital in Oak Lawn, Illinois. She provides services in the Pediatric Cardiac Intensive Care Unit, High Risk Single Ventricle Clinic and Neurodevelopmental Follow-Up Clinic. During her more than 20 years in the field, she has specialized in pediatric feeding disorders. Her career focus has been working with infants born with complex congenital heart disease and their families in the pediatric intensive care unit before and after surgery. She has a special interest in feeding and swallowing challenges, neuroprotection interventions and neurodevelopmental support for this specialized population. Jennifer enjoys collaborating with families and medical teams to improve long-term outcomes for these infants. Jennifer has lectured across the nation and contributed to publications providing education to others on the importance of early intervention, family involvement and clinical pathways to improve oral feeding experiences for newborns with CHD. She has been involved in the Nutrition & Growth Committee Initiatives through NPCQIC and Co-Chair for the CNOC Education and Training Committee. |
 Kristi Glotzbach MD University of Utah – Primary Children’s Hospital [email protected] Quality Improvement Chair |
Dr. Glotzbach is a cardiac intensivist and the co-director of the Heart Center Neurodevelopmental Program at the University of Utah and Primary Children’s Hospital. Dr. Glotzbach has clinical, quality improvement (local, NPS-QIC and CNOC) and research interests in inpatient (post-operative neuromonitoring, developmental care and parental engagement) and outpatient modifiers of developmental outcomes in CHD. Dr. Glotzbach is an institutional leader in multiple QI projects aimed at neurodevelopmental practices and care delivery. Since joining CNOC in 2016, Dr. Glotzbach has served the CNOC mission as a member of the education and training committee and the QI committee. |
Nadine Kasparian PhD Cincinnati Children’s Hospital [email protected] Program & Meetings Co-Chair |
Nadine Kasparian is Professor of Pediatrics and Founding Director of the Cincinnati Children’s Center for Heart Disease and the Developing Mind, a partnership between the Heart Institute and Division of Behavioral Medicine & Clinical Psychology at Cincinnati Children’s Hospital. She is also Head of Cardiac Psychology at the Sydney Children’s Hospitals Network (SCHN). Nadine holds a National Heart Foundation of Australia Future Leader Fellowship (2017-2021) and was awarded a Harkness Fellowship in Health Care Policy and Practice based at Harvard Medical School (2018-2019). Her research investigates psychological and neurobiological aspects of chronic illness in children, particularly congenital heart disease (CHD), and she has established one of the largest psychobiological datasets in CHD. Nadine has a PhD in medical psychology from the University of Sydney and serves on the editorial board for Health Psychology Review and Psychology & Health. She is also a practicing clinician and in 2018 her team received the SCHN Innovation Award for Excellence in the Provision of Mental Health Services for Children with Heart Disease and their Families. |
 Bea Latal MD MPH University Children’s Hospital Zurich [email protected] Publications Chair |
Dr. Latal is the Co-Director of the Child Development Center at the University Children’s Hospital Zurich. She leads a large research group and is dedicated to teaching and faculty development. In her research group “Children’s Heart and Development”, Dr. Latal’s aims to characterize the prevalence and severity of neurodevelopmental impairments in patients with complex congenital heart disease across their lifespan, to identify risk factors for impairments and to study the mechanisms involved in the etiology of brain injury. With her research team, Dr. Latal develops new interventions such as parent-centered early motor intervention and multimodal executive function training during adolescence. The goal of these interventions is to improve the neurodevelopmental outcome and quality of life of these vulnerable patients and will ensure an optimal integration into adult life. |
 Karli Negrin MS CCC SLP Nemours Children’s Health [email protected] Communications Co-Vice Chair |
Karli Negrin is a Speech Language Pathologist and a dedicated member of the Cardiac Developmental Care Team at Nemours Children Health. She has over 15 years of experience addressing feeding and swallowing disorders of infants with congenital heart disease. She has a special interest in preserving the parent and infant dyad as it relates to feeding experiences as well as examining the impact of restrictive feeding on family quality of life. Karli serves as Vice Chair of the Cardiac Newborn Neuroprotective Network and Vice Chair of the Communication Committee of the Cardiac Neurodevelopmental Outcomes Collaborative. |
| Chetna Pande MD MPH Texas Children’s Hospital [email protected] Communications Co-Vice Chair |
|
 Sarah Plummer MD [email protected] Rainbow Babies and Children’s Hospital Quality Improvement Vice Chair |
Dr. Plummer is a pediatric cardiologist at Rainbow Babies and Children’s Hospital in Cleveland, Ohio. Dr. Plummer is the Director of Quality for the Rainbow Heart Center, as well as Co-Director of the Single Ventricle Program and Director of the Cardiac Neurodevelopmental Outcomes Initiative. Dr. Plummer’s research and clinical interests are thus in quality improvement – particularly with respect to neurodevelopmental outcomes in children with congenital heart disease, the care of the patient with single ventricle heart disease, echocardiography, and the diagnosis and management of fetal heart disease. Given her interests in cardiac neurodevelopment and quality improvement, Dr. Plummer has been a member of the CNOC Quality Improvement Committee since 2021, assuming the role of Vice Chair in 2023. In addition, she believes in the best outcomes for all patients and that all patients deserve to receive equitable care regardless of gender, race, ethnicity, socioeconomic status, or sexual orientation. Given this focus, Dr. Plummer is also a member of CNOC’s Diversity and Inclusion Special Interest Group. |
 Caitlin Rollins MD SM Boston Children’s Hospital [email protected] Research Co-Chair |
Dr. Rollins is Assistant Professor of Neurology at Harvard Medical School and the Director for Boston Children’s Hospital’s Cardiac Neurodevelopmental Program where she cares for children with congenital heart disease from infancy into adulthood. As an NIH-funded clinical researcher, her work lies at the intersection of neurology and cardiology, evaluating the relationships between brain MRI findings and neurodevelopmental outcome in children with congenital heart disease. Her most recent work has been focused on the association of brain MRI findings in the fetal period with outcome. Dr. Rollins’ clinical work as a neurologist caring for patients with congenital heart disease informs her research and supports her dedication to bring the benefits of research to children and their families. |
 Amanda J. Shillingford MD Children’s Hospital of Philadelphia [email protected] Program & Meetings Co-Chair |
Dr. Amanda Shillingford is a pediatric and fetal cardiologist at the Children’s Hospital of Philadelphia and Associate Professor of Clinical Pediatrics at the Perelman School of Medicine at the University of Pennsylvania. She is the Cardiology Lead for the CHOP Cardiac Kids Developmental Follow-up Program, which has recently embarked on an expansion project to improve access to developmental care for all children with CHD. She has a longstanding research interest in characterizing and improving the neurodevelopmental outcomes and psychosocial experience for children and their families living with CHD. Dr. Shillingford has been a co-investigator on a number of multicenter and multidisciplinary grant funded research projects and continues to be active in outcomes research. As a member of the CHOP Cardiac Center Family Advisory Council, the CHOP Family StEPS (starting early with psychosocial support) Program Council, and a medical advisory board member for the Bret Boyer Foundation, Dr. Shillingford is able to link her clinical experience to family centered programmatic improvements across the continuum of care.
Dr. Shillingford completed her pediatric and pediatric cardiology training at CHOP. She worked at Children’s Hospital of Wisconsin and Nemours / A.I. duPont Hospital for Children prior to returning to CHOP in 2015. Dr. Shillingford is excited to join the CNOC team and looks forward to the ongoing growth and collaboration of the CNOC community. |
 Erica Sood PhD [email protected] Nemours Children’s Health Database & Implementation Vice Chair |
Dr. Erica Sood is a pediatric psychologist at Nemours Children’s Hospital, Delaware and an Associate Professor of Pediatrics at Sidney Kimmel Medical College of Thomas Jefferson University. She directs the Nemours Cardiac Learning and Early Development (LEAD) Program and trains psychology fellows in the specialty area of cardiac neurodevelopment. Her research focuses on partnering with stakeholders to develop and test family-based psychosocial interventions to promote family wellbeing and child neurodevelopmental outcomes. She serves on the Editorial Boards of Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology and on the Scientific Advisory Committee for Conquering CHD. |
Core Lab Leadership
 Jacqueline H. Sanz PhD ABPP-CN Children’s National Medical Center [email protected] Lead, Neurodevelopmental Core Lab (2018-2023) |
Jacqueline Sanz PhD is a board certified neuropsychologist at Children’s National Health System. She is an Assistant Professor in the departments of Psychiatry and Behavioral Sciences and Pediatrics at the George Washington University School of Medicine. Dr. Sanz also co-directs the Cardiac Neurodevelopmental Outcomes Program (or CANDO Program) at CNHS. Dr. Sanz’s research focuses on neurodevelopmental outcomes in congenital heart disease, especially the role of executive function in predicting quality of life. |
 David Wypij PhD Boston Children’s Hospital [email protected] Lead, Data Analysis Core (2018-2023) |
David Wypij is Senior Biostatistician in the Department of Cardiology at Boston Children’s Hospital, Associate Professor of Pediatrics at Harvard Medical School, and Senior Lecturer at Harvard T.H. Chan School of Public Health. He has considerable experience in the leadership of biostatistical and data coordinating centers for both single- and multi-center clinical trials and longitudinal cohort studies, with special expertise in the areas of neurodevelopment and adolescent health, pediatric cardiology, and pediatric ICU management. He has served as principal investigator of several data coordinating centers, as co-investigator and senior biostatistician of numerous NIH-funded studies related to cardiac surgery clinical trials and neurodevelopmental follow-up, and as a mentor for junior researchers at Boston Children’s Hospital and graduate students at Harvard. He is an award-winning teacher and has taught courses in many areas of biostatistics and clinical trials at Harvard as well as short courses in Brazil, Gabon, Great Britain, Greece, Italy, and Portugal. |