Cardiac Newborn Neuroprotective Network
Special Interest Group of CNOC
Thinking about joining a SIG? How about one that is fun, open and welcoming to all who care for babies with CHD? We guarantee you will learn something new, meet someone new, and be a part of great ideas for infants with CHD!
ABOUT CNNN
Welcome to the Cardiac Newborn Neuroprotective Network (CNNN). The CNNN is a multidisciplinary group of professionals collaborating to improve hospital-based care for newborns with congenital heart defects. We aim to find ways to support families and providers during the newborn’s surgical journey to home. We aim to find ways to spread the word on research and interventions through providing education on individualized developmental care in order to improve quality of life and positive long-term outcomes.
CNNN began with Samantha Butler and Jennifer Fogel looking for other professionals interested in focusing on the newborn population and specific supports during hospitalization. Both Samantha and Jennifer are committee members in CNOC and the National Pediatric Cardiac Quality Improvement Collaborative (NPCQIC). CNNN started separately from these groups and focuses on the newborn period during hospitalization.
GOALS
- Promoting individualized developmental care for cardiac patients.
- Creating standard care practices for CHD infants and their families.
- Sharing ideas, materials, and education between CNNN members.
- Collaborating on manuscripts, research and dissemination of resource materials.
FOCUS GROUPS
- Cardiac Neuroprotective Care and Neurodevelopment in the CICU
- Quality Improvement
- Cardiac Neurodevelopmental Assessment in the CICU
- Oral Feeding development in the CICU
CNNN on Social Media
Check us out as we TWEET! Follow us on Twitter @NewbornCardiac
CNNN Manuscripts
CNNN is interested in collaborating on professional manuscripts. Check out our published manuscripts.
Disruptions in Developtment of Feeding for CHD
Join our Listserv
CNNN listserv is a great place to ask questions and share information. It is a judgement-free zone for collaboration and has stayed true to its grassroots philosophy that we can learn and grow together. To join our listserv please email [email protected] and tell us about you, why you would like to join the group, your position, and the hospital you are from.
Frequently Asked Questions:
Q: How do I join?
A: First, contact one of the SIG Chairs to indicate your interest (Jennifer Fogel MS CCC SLP/L ([email protected]) or Samantha Butler PhD ([email protected]). If you have already become a member of CNOC through your institution by completing the Affiliated Staff application (complimentary), then you will be added to the SIG. If you work for a CNOC Institutional Member and have not joined CNOC yourself, you will be asked to complete an Affiliated Staff Application before being added as a member of the CNNN.
Q: Does my institution have to be a member of CNOC to maintain membership with the CNNN?
A: If your institution is not a CNOC member then you can still be part of our SIG by filling out the Nonmembers SIG/Committee Only Application and paying a nominal fee.
Q: What Disciplines does CNNN represent?
A: The CNNN was established in 2017 as a grass-roots group of professionals interested in collaboration around care of the newborn CHD population. In 2020, they joined CNOC as the inaugural SIG with a focus on promoting individualized developmental care in the inpatient setting for newborns with CHD. The CNNN is a multidisciplinary group representing many disciplines (physicians, nursing, speech/language pathology, physical therapy, occupational therapy, feeding therapy, psychology, and family members of individuals with CHD), and they are excited about accepting new members.
Our Founders
Chair: Jennifer Fogel MS CCC SLP/L
([email protected])
Vice Chair: Samantha Butler PhD ([email protected])