Name of Program:
Rady Children’s Hospital San Diego – UC San Diego
Year Program Established:
2019 – Cardiac Neurodevelopmental Outcomes Clinic
2007 – NICU Neurodevelopmental Clinic (formerly known as High-Risk Infant Follow-Up)
Program Leaders:
Brian T. Fagan, MD – Medical Director, Cardiac Neurodevelopmental Outcomes Clinic
Brian Lane, MD – Medical Director, NICU Neurodevelopmental Clinic
Key Staff and Specialties:
Elizabeth A. Valles, D.N.P, C.P.N.P.-PC, F.N.P-C, Certified Pediatric Nurse Practitioner
Mark Abcede, M.B.A., CCRP – Director, Heart Institute Data Analytics and Research Program
Haven Qualman, M.A., CCC-SLP, Manager, Developmental Services
Age Range of Patients Served:
0-3 years old: NICU Neurodevelopmental Clinic
3.5-18 years old: Cardiac Neurodevelopmental Outcomes Clinic
Description of Inpatient Program(s):
Developmental services include:
Identification of patients at risk for compromised neurodevelopment.
Initiation of appropriate developmental services in Cardiac Unit.
Referral for early intervention resources prior to discharge home.
Institutional participation in data registries:
CNOC
PC4
PAC3
Description of Outpatient Program(s):
Feeding & Sleeping
Speech & Language
Fine Motor Skills
Gross Motor Skills
Social Emotional Development
Social interaction
Learning evaluations
Screening for:
Quality of Life (patient and family)
Anxiety
Depression
Executive Function
Autism
Evaluate:
Neuromotor function (muscle strength or weakness)
Growth and nutrition (physical growth)
Language development (ability to listen and talk)
Social interaction (ability to interact with others)
Developmental milestones (ability to achieve developmental stages)
Provide patients and their family resources and referrals for support; including IEP/504 accommodations, mental health resources, referrals to appropriate clinics
Referrals for further developmental and/or behavior testing may be made to Developmental Evaluation Clinic, Regional Center or other agencies as appropriate.
Associated Programs:
NICU Neurodevelopmental Clinic: 3 scheduled neurodevelopmental and physical screenings
Developmental Evaluation Clinic: depending on diagnosis and specific needs.
Cardiology Home Monitoring Program (High Risk Interstage Patients)
Single Ventricle Program
Transitional Cardiology Program
Unique features and strengths of this program:
Run by Nurse Practitioner and MD
Robust experience with telemedicine consultation
Growing international presence – including Saipan